Families of Spinal Muscular Atrophy (India) TRUST, FSNA India aims to create awareness about the disease SMA in India the number one genetic killer of children in the whole world. We will not let SMA and other rare diseases to rob children and adults of health, happiness, dignity and productive life. LSMA India aims to bring a treatment to India to cure all children and adults affected by SMA and improve the quality of life of all SMA patients, We also aspire to bring treatments from abroad and also support SMA research locally.
We intend to work closely with the government and other national and international NGO’s to facilitate the delivery of treatments to patients in India and to form policies and laws that will ensure that all SMA patients receive appropriate medical care without financial, Racial or religious prejudic3e and all SMA patients have access to health insurance to meet their medical needs.
It is our resolve to give support to all SMA families and also other families suffering from SMA. No family should feel alone in its fight against SMA, we are all in this together and together we will stand to create a better, brighter future for our children and families.